Development of CARRA/PReS-endorsed consensus Core and Expanded Datasets in childhood-onset systemic lupus erythematosus for international registry-based research
Rebecca E. Sadun(Duke University), Eve Smith(University of Liverpool), Elissa R. Weitzman(Harvard University), Alisha Akinsete(Hospital for Special Surgery), Christian M. Hedrich(University of Liverpool), Laura E. Schanberg(Duke University), Emily von Scheven(Unknown), Mary Beth F. Son(Boston Children's Hospital), Lynette Bortey(University of Liverpool), Jennifer C. Cooper(University of Colorado Anschutz Medical Campus), Hermine I. Brunner(Cincinnati Children's Hospital Medical Center), Angelo Ravelli(Istituto Giannina Gaslini), Tadej Avčin(University of Ljubljana), Tamar B. Rubinstein(Hacettepe University), Stacy P. Ardoin(The Ohio State University), Michael W. Beresford(University of Liverpool), Alexandre Bélot(Université Claude Bernard Lyon 1), Deborah M. Levy(University of Toronto), Angela Migowa, L. Lambert(University of Liverpool), Bryce B. Reeve(Duke University Health System), Amita Aggarwal(Sanjay Gandhi Post Graduate Institute of Medical Sciences), Scott E. Wenderfer, Christiaan Scott(University of Ottawa), Candace H. Feldman(Brigham and Women's Hospital), David Isenberg(Regenerative Medicine Institute), Stephen D. Marks(Great Ormond Street Hospital), Naomi Maxwell(LUPUS UK), Aimee O. Hersh(University of Utah), Joyce C. Chang(Boston Children's Hospital), Sujata Sawhney(Sir Ganga Ram Hospital), Seza Özen(Hacettepe University), Sylvia Kamphuis(Erasmus MC), Coziana Ciurtin(University College Hospital), Laura B. Lewandowski(National Institutes of Health), B. Anne Eberhard(Hofstra University), Rosalind Ramsey‐Goldman(Northwestern University), Andrea Knight(University of Toronto), Gladys Tony(Childhood Arthritis and Rheumatology Research Alliance), Alisha Woodside(Childhood Arthritis and Rheumatology Research Alliance), Jenny Ainsworth(University of Liverpool), Claudia Saad-Magalhães(Universidade Estadual Paulista (Unesp)), Linda T. Hiraki(Harvard University), Ashley Daftary(University of Nevada, Reno), Katharine Moore(University of Colorado Anschutz Medical Campus)
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