Clinical Data as the Basic Staple of Health Learning: Creating and Protecting a Public Good: Workshop Summary

Abstract

1 Front Matter 2 Summary 3 1 Clinical Data as the Basic Staple of the Learning Health System 4 2 U.S. Healthcare Data Today: Current State of Play 5 3 Changing the Terms: Data System Transformation in Progress 6 4 Healthcare Data: Public Good or Private Property? 7 5 Healthcare Data as a Public Good: Privacy and Security 8 6 Creating a Next-Generation Data Utility: Building Blocks and the Action Agenda 9 7 Engaging the Public 10 8 Clinical Data as the Basic Staple of Health Learning: Ideas for Action 11 Appendixes 12 Appendix A: Workshop Agenda 13 Appendix B: Biographical Sketches of Workshop Participants 14 Appendix C: Workshop Attendee List 15 Appendix D: The IOM Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule 16 Other Publications in the Learning Healthcare System Series