CBTRUS Statistical Report: Primary Brain and Central Nervous System Tumors Diagnosed in the United States in 2008-2012

Quinn T. Ostrom(Case Western Reserve University), Haley Gittleman(Central Brain Tumor Registry of the United States), Jordonna Fulop(Case Western Reserve University), Max Liu(Hunter Defense Technologies (United States)), Rachel Blanda(Georgetown University), Courtney Kromer(Case Western Reserve University), Yingli Wolinsky(Case Western Reserve University), Carol Kruchko(Central Brain Tumor Registry of the United States), Jill S. Barnholtz‐Sloan(Central Brain Tumor Registry of the United States)
Neuro-Oncology
October 1, 2015
10.1093/neuonc/nov189
Cited by 2,157Open Access
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Abstract

CBTRUS does not collect data directly from patients' medical records. As noted, data for CBTRUS analyses come from the NPCR and SEER programs. By law, all primary malignant and non-malignant brain tumors are reportable diseases. Hence, tumor registrars in treatment centers collect these data and send this information to CCR in their states where they are collated and de-identified and sent to NPCR and SEER. Brain and CNS tumors are reported using the site definition described in Public Law 107-260. On an annual basis, NPCR secures permission from CCR to release their data on brain and CNS tumors to CBTRUS. CCR plays an essential role in the collection process, diagrammatically presented in Figure These data are population-based and, therefore, by definition, represent a comprehensive documentation of all cancers diagnosed within a geographic region over a period of time.

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