“Il faut continuer à poser des questions” patient reported outcome measures in cystic fibrosis: An anthropological perspective
R. Coucke(Hôpital Necker-Enfants Malades), Diana Hofmann(Forschungszentrum Jülich), Maxime Hautrive, Isabelle Sermet‐Gaudelus(Hôpital Necker-Enfants Malades), Elise Lammertyn, Anna Fonts, Anne Calvert, D. Hubert(Inserm), F. Chedevergne(Vaincre la Mucoviscidose), Emmanuelle Bardin(Inserm), Véronique Bontemps(Institut de Recherche pour le Développement), H. De Keyser, T. Havermans, Veerle Bulteel, Isabelle Honoré(Inserm), A. Chansard, Clémence Martin(Délégation Paris 5), Claire Bresnihan, Maya Kirszenbaum(Hôpital Necker-Enfants Malades), Dominique Grenet(Hôpital Foch), Pierre‐Régis Burgel(Inserm), P. De Carli(Vaincre la Mucoviscidose), Muriel Le Bourgeois(Hôpital Necker-Enfants Malades), Jutta Bend, Kate Hayes(Cystic Fibrosis Ireland), Andreas Häger
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