‘A sword of Damocles’: patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study

Charlotte Logeman(The University of Sydney), Allison Tong(The University of Sydney), Albert Ong(University of Sheffield), Tess Harris(Polycystic Kidney Disease Foundation), Curie Ahn(Seoul National University), Bénédicte Sautenet(Université de Tours), Gayathri Parasivam(The University of Sydney), Jonathan C. Craig(Flinders University), Gopala K. Rangan(Westmead Hospital), Yeoungjee Cho, Talia Gutman(The University of Sydney), David W. Johnson(Hennepin County), York Pei(University Health Network), Armando Teixeira‐Pinto(The University of Sydney), Jessica Ryan(Monash Medical Centre), Kevin Fowler(Voice of America (United States)), Helen Coolican(Kidney Health Australia), Vicente E. Torres(Mayo Clinic in Arizona), Andrea K. Viecelli(The University of Queensland), Martin Howell(UNSW Sydney), Ronald D. Perrone(Tufts Medical Center), Hyunsuk Kim(Seoul National University Hospital), Peter G. Kerr(Monash Health), Angela Ju(The University of Sydney), Juliana Tze‐Wah Kao(Fu Jen Catholic University), Ron T. Gansevoort, C. Geneste(Centre Hospitalier Universitaire de Tours), Yaerim Kim(Seoul National University), Arlene B. Chapman(Emory University), Karine Manera(The University of Sydney)
BMJ Open
October 1, 2020
Cited by 17


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