Protocol for the development of guidance for stakeholder engagement in health and healthcare guideline development and implementation

Jennifer Petkovic(University of Ottawa), Alison Riddle(University of Ottawa), Elie A. Akl(American University of Beirut), Joanne Khabsa(American University of Beirut), Lyubov Lytvyn(McMaster University), Pearl Atwere(Bruyère), Pauline Campbell(Glasgow Caledonian University), Kalipso Chalkidou(Imperial College London), Stephanie Chang(Agency for Healthcare Research and Quality), Sally Crowe, Leonila F. Dans(University of the Philippines Manila), Fadi El‐Jardali(American University of Beirut), Davina Ghersi(National Health and Medical Research Council), Ian D. Graham(University of Ottawa), Sean Grant(Indiana University – Purdue University Indianapolis), Regina Greer-Smith(Apple (United States)), Jeanne‐Marie Guise(Oregon Health & Science University), Glen Hazlewood(University of Calgary), Janet Jull(Queen's University), Srinivasa Vittal Katikireddi(MRC/CSO Social and Public Health Sciences Unit), Étienne V Langlois(World Health Organization), Anne Lyddiatt(Cochrane), Lara Maxwell(University of Ottawa), Richard Morley(Cochrane), Reem A. Mustafa(University of Kansas Medical Center), Francesco Nonino(Institute of Neurological Sciences), Jordi Pardo Pardo(Ottawa Hospital), Alex Pollock(Glasgow Caledonian University), Kevin Pottie(University of Ottawa), John J. Riva(McMaster University), Holger J. Schünemann(Cochrane), Rosiane Simeon(University of Ottawa), Maureen Smith(Cochrane), Aírton Tetelbom Stein(Universidade Federal de Ciências da Saúde de Porto Alegre), Anneliese Synnot(La Trobe University), Janice Tufte(Patient-Centered Outcomes Research Institute), Howard White(Deakin University), Vivian Welch(University of Ottawa), Thomas W. Concannon(Tufts University), Peter Tugwell(University of Ottawa)
Systematic Reviews
February 1, 2020
10.1186/s13643-020-1272-5
Cited by 252Open Access
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Abstract

BACKGROUND: Stakeholder engagement has become widely accepted as a necessary component of guideline development and implementation. While frameworks for developing guidelines express the need for those potentially affected by guideline recommendations to be involved in their development, there is a lack of consensus on how this should be done in practice. Further, there is a lack of guidance on how to equitably and meaningfully engage multiple stakeholders. We aim to develop guidance for the meaningful and equitable engagement of multiple stakeholders in guideline development and implementation. METHODS: This will be a multi-stage project. The first stage is to conduct a series of four systematic reviews. These will (1) describe existing guidance and methods for stakeholder engagement in guideline development and implementation, (2) characterize barriers and facilitators to stakeholder engagement in guideline development and implementation, (3) explore the impact of stakeholder engagement on guideline development and implementation, and (4) identify issues related to conflicts of interest when engaging multiple stakeholders in guideline development and implementation. DISCUSSION: We will collaborate with our multiple and diverse stakeholders to develop guidance for multi-stakeholder engagement in guideline development and implementation. We will use the results of the systematic reviews to develop a candidate list of draft guidance recommendations and will seek broad feedback on the draft guidance via an online survey of guideline developers and external stakeholders. An invited group of representatives from all stakeholder groups will discuss the results of the survey at a consensus meeting which will inform the development of the final guidance papers. Our overall goal is to improve the development of guidelines through meaningful and equitable multi-stakeholder engagement, and subsequently to improve health outcomes and reduce inequities in health.

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