FV 300. Living with Severe Rare Chronic Neurological Disease in Childhood: Family Burden and Quality of Life in Families with MLD and PCH2
Louisa Ammann(Universitätsklinikum Tübingen), Ingeborg Krägeloh‐Mann(University Children's Hospital Tübingen), Saskia Frölich(University Children's Hospital Tübingen), Samuel Gröschel(Universitätsklinikum Tübingen), Christiane Kehrer(University Children's Hospital Tübingen)
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