Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US
Saskia C. Sanderson(King's College London), Ingrid A. Holm(Boston Children's Hospital), Stephanie M. Fullerton(University of Washington), Diego Campos(Children's Hospital of Philadelphia), Valerie McManus(Marshfield Clinic), Maureen E. Smith(Northwestern University), David Carrell(Kaiser Permanente Washington Health Research Institute), Janet L. Williams(Geisinger Health System), Melanie F. Myers(Cincinnati Children's Hospital Medical Center), Martha J. Shrubsole(Vanderbilt University), Catherine A. McCarty(University of Minnesota, Duluth), Jonathan S. Schildcrout(Vanderbilt University Medical Center), Gail P. Jarvik(University of Washington Medical Center), Carol R. Horowitz(Icahn School of Medicine at Mount Sinai), Terrie Kitchner(Marshfield Clinic), John J. Connolly(Children's Hospital of Philadelphia), Jennifer B. McCormick(Mayo Clinic), Murray H. Brilliant(Marshfield Clinic), Pat Conway(Essentia Health), Kyle B. Brothers(University of Louisville), Evette Ludman(Kaiser Permanente Washington Health Research Institute), Nathaniel D. Mercaldo(Massachusetts General Hospital), Aaron Scrol(Kaiser Permanente Washington Health Research Institute), Nanibaa’ A. Garrison(University of California, Los Angeles), Ellen Wright Clayton(Vanderbilt University Medical Center), David Kaufman(National Human Genome Research Institute), Armand H. Matheny Antommaria(Cincinnati Children's Hospital Medical Center), Rongling Li(University of Tennessee Health Science Center), Sharon Aufox(Northwestern University)
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