The neurologist's role in supporting transition to adult health care

Lawrence W. Brown(Brigham and Women's Hospital), Peter Camfield(Brigham and Women's Hospital), Melissa Capers(Brigham and Women's Hospital), G. D. Cascino(Brigham and Women's Hospital), Mary Ciccarelli(Brigham and Women's Hospital), Claudio M. de Gusmão(Brigham and Women's Hospital), Stephen M. Downs(Brigham and Women's Hospital), Annette Majnemer(Brigham and Women's Hospital), Amy Miller(Brigham and Women's Hospital), Christina SanInocencio(Brigham and Women's Hospital), Rebecca Schultz(Brigham and Women's Hospital), Anne Tilton(Brigham and Women's Hospital), Annick Winokur(Brigham and Women's Hospital), Mary L. Zupanc(Brigham and Women's Hospital)
Neurology
July 28, 2016
Cited by 110Open Access
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Abstract

The child neurologist has a critical role in planning and coordinating the successful transition from the pediatric to adult health care system for youth with neurologic conditions. Leadership in appropriately planning a youth's transition and in care coordination among health care, educational, vocational, and community services providers may assist in preventing gaps in care, delayed entry into the adult care system, and/or health crises for their adolescent patients. Youth whose neurologic conditions result in cognitive or physical disability and their families may need additional support during this transition, given the legal and financial considerations that may be required. Eight common principles that define the child neurologist's role in a successful transition process have been outlined by a multidisciplinary panel convened by the Child Neurology Foundation are introduced and described. The authors of this consensus statement recognize the current paucity of evidence for successful transition models and outline areas for future consideration.


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