Providing family-centred care for rare diseases in maternity services: Parent satisfaction and preferences when dysmelia is identified
Judith Johnson(University of Leeds), Peter Taylor(University of Liverpool), Dileep Wijeratne(Leeds Teaching Hospitals NHS Trust), Jane Heyhoe(Bradford Royal Infirmary), Tobias Arndt(European Centre for Disease Prevention and Control), Geoff Adams-Spink(European Union)
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