Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB)
Yaffa Rubinstein(National Institutes of Health), Stephen C. Groft(National Institutes of Health), Ronald Bartek(Friedreich's Ataxia Research Alliance), Kyle Brown, Ronald Christensen, Elaine Collier(National Institutes of Health), Amy Farber(LAM Foundation), Jennifer Farmer(Friedreich's Ataxia Research Alliance), John H. Ferguson(National Institutes of Health), Christopher B. Forrest(Children's Hospital of Philadelphia), Nicole C. Lockhart(National Institutes of Health), Kate R. McCurdy(Rome Foundation), Helen Moore(National Institutes of Health), Geraldine B. Pollen(National Institutes of Health), Rachel Richesson(University of South Florida), Vanessa Rangel Miller(Emory University), Sara Chandros Hull(National Human Genome Research Institute), Jim Vaught(National Institutes of Health)
Cited by 116
Abstract
Related Papers
No related papers found
Powered by citation graph analysis